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12/03/2013
IHF Launch Campaign To Stop Blood Test Records Destruction
A campaign to stop the destruction of Newborn Screening Card blood samples has been launched by the Irish Heart Foundation.
The IHF says the cards could save the lives of extended family members of more than 1,000 young victims of Sudden Cardiac Death.
The heel prick test blood samples are set to be destroyed on 31 March to comply with EU data protection laws.
Launching the Stop the Destruction campaign, the IHF said that only 12% of the population were aware of the plans to dispose of the cards.
A decision to destroy the cards was made on legal and ethical grounds following a complaint to the Data Protection Commissioner in 2009.
A subsequent policy review recommended that samples more than ten years old be destroyed unless their owners or guardians request their return.
The HSE deadline for this request has been set at 31 March, Easter Sunday, after which all other samples will be incinerated.
(H)
The IHF says the cards could save the lives of extended family members of more than 1,000 young victims of Sudden Cardiac Death.
The heel prick test blood samples are set to be destroyed on 31 March to comply with EU data protection laws.
Launching the Stop the Destruction campaign, the IHF said that only 12% of the population were aware of the plans to dispose of the cards.
A decision to destroy the cards was made on legal and ethical grounds following a complaint to the Data Protection Commissioner in 2009.
A subsequent policy review recommended that samples more than ten years old be destroyed unless their owners or guardians request their return.
The HSE deadline for this request has been set at 31 March, Easter Sunday, after which all other samples will be incinerated.
(H)
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